Maine Girl With 'Mermaid Syndrome' Dies at Age 10
Saturday, October 24, 2009
APDec. 20, 2007: Shiloh Pepin laughs with her parents while sitting on a counter in the family's Kennebunkport, Maine home.
KENNEBUNKPORT, Maine — Shiloh Pepin, a girl who was born with fused legs, a rare condition often called "mermaid syndrome," and gained a wide following on the Internet and national television, has died. She was 10.
Doctors had predicted she would only survive only for days after her birth at the most, but the girl, described by her mother as "a tough little thing," died at Maine Medical Center on Friday afternoon, hospital spokesman John Lamb said. She had been hospitalized in critical condition for nearly a week.
Being born with "mermaid syndrome," also known as sirenomelia, meant that the Kennebunkport girl had only one partially working kidney, no lower colon or genital organs and legs fused from the waist down.
Some children who have survived sirenomelia have had surgery to separate their legs, but Shiloh did not because blood
Her story was featured recently on "The Oprah Winfrey Show" and other national television programs.
Earlier this month, her mother, Leslie Pepin, said her daughter came down with a cold that quickly turned to
For a while, Leslie Pepin said, things were looking up. "She's a tough little thing," she said of her daughter earlier this week.
Shiloh was a fifth-grader at Kennebunkport Consolidated School. "She was such a shining personality in that building," said Maureen King, chairwoman of the board of the regional school district. Counselors will be available next week to talk to students.
Through the television shows, news articles, Facebook and other Web sites, Shiloh inspired many.
"I live in Iowa. I have cerebral